My mind is saying “I want to fly, I want to SOAR, I want to be as free as a butterfly and discover this world to the fullest.
I took these pictures last week. They remind me of how carefree I have always longed to be but never could be and how I still want to SOAR like a butterfly or a bird!
I have this incredible drive to experience all things life.
And yet, my body is telling me something else. I literally have not been out of my house in days.
I did not expect to be hit so hard from this past week of fun as I do have a routine that helps me to sustain this wonderful lifestyle of mine.
But since this has happened, I decided today to give others a view from the inside as to what it’s like to live this very different life. It’s time to make my voice heard to give others a better understanding.
There are some very important things to know about people who live daily with a chronic illness. It has only been in the last few years that I, personally have started to accept that I even have chronic illnesses as I had been in denial for so many years most likely since I was eight years old. I am sure there are many others out there just like me😊.
The message below says it well for all of us dealing with extra stuff and feeling like we can’t measure up because we can’t keep up…
When it comes down to it, we all need that fundamental right…that sense of belonging, to be respected, and feel valued on a regular basis. And, we all need each other. These rights and feelings hold extra meaning to people who have daily struggles because we are treated differently. Many times we experience feeling ‘invisible’ because we can’t keep up and are different, others treat us as if we are ‘less than’ or merely incapable of doing things or making decisions for ourselves. We are excluded from activities that require endurance, normal physical abilities, and strong independence yet we are some of the most independent and emotionally strong people out there. Our chronic issues are what have made us stronger, more courageous, and more independent. That is what I want others to see. I want others to understand that we have the same needs as everyone else and many times the same wants.
Like I said in the beginning of this blog, for as long as I remember, I have longed to ‘fly and soar’ and experience the world. It’s kind of ironic that I would be given this passion for life and yet only be able to experience it more slowly and more well planned than most. But, I guess I was given that drive to remind me to keep pushing on in the face of adversity and for that I am grateful.
And, so, ‘lessons learned’😊, I go into this week with new boundaries set in place and with the knowledge my struggle is real, isn’t everyone’s😎 and I must remember it every day and if on the outside it looks like I am sometimes unfriendly, not social, or showing isolating tendencies, it might be because I am fighting hard that day to remain significant and to enjoy ‘all things life’ in the way that I can.
And, so, for now, I will embrace these new lessons and keep The HOPE!
Have a wonderful week and remember to find the HOPE and the JOY that life brings no matter what your circumstances are. ☀️💚☀️